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Goldenhar Syndrome Support Network
 
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Monday 10/08/2007 5:59:43pm

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Sunday 04/30/2006 10:08:23am
Name: Eileen Proven
E-Mail: cproven@verizon.net
Homepage Title:
Homepage URL:
Referred By: Just Surfed In
Location: www.goldenharsyndrome.org
Comments: I am the mother of Julia, four years old, born with Goldenhar Syndrome. Thank you for having a website dedicated to hope and inspiration.




Friday 04/21/2006 10:50:18am

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Monday 04/17/2006 11:28:45am
Name: Deborah Norris
E-Mail: djc7221970@yahoo.com
Homepage Title:
Homepage URL:
Referred By: Just Surfed In
Location:
Comments: I too have Goldenhars. I am 35 years old and don't know much about it . I am looking for all the information that I can get. I also would like to be part of the group. Please help me find myself.




Sunday 03/26/2006 9:01:40am
Name: Dr. Jordan M. Graff
E-Mail: doctorgraff@yahoo.com
Homepage Title: EyeRounds - Ophthalmology information
Homepage URL: http://www.eyerounds.org
Referred By: Search Engine
Location: University of Iowa Hospitals and Clinics
Comments: I am a physician in the field of Ophthalmology and Ocular Surgery. Recently, I saw a patient with very mild Goldenhar syndrome. I run an educational website for surgeons, but it is open to the public. Together with Dr. Richard Olson and Dr. Rahul Bhola we created a case report to teach more about the oculo-auriculo-vertebral spectrum. I found your site in researching information currently available on the Internet. We hope you find the information we have added to the database to be useful (www.eyerounds.org).

Jordan M. Graff, MD

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