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CleftPALS QLD INC.
 
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Tuesday 02/09/2010 4:59:46am
Name: Cassy Cooke
E-Mail: caroline.j.cooke@gmail.com
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Referred By: Search Engine
Location: TOOWOOMBA
Comments: My son is now 10 y/o, and we are nearing the bone grafting, I only go To Toowoomba Hospital for rare paediatrics otherwise it is Brisbane for us. I noticed a newly born cleft baby a few months ago and I was amazed how little the woman knew or information the nurses could give her. It has made me want to become involved in the cause up here.



Wednesday 12/03/2008 8:15:17pm
Name: Jane Bettington
E-Mail: bettington@hotmail.com
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Referred By: Just Surfed In
Location: Tamworth NSW
Comments: Have you had any luck applying for support in schools? I am having difficulty signing off on the student having 'a disability' - a physical condition involving the motor system that limits the student's functioning??? I want to get Early Intervention for this child.



Sunday 10/26/2008 7:24:50am
Name: Jackie Button
E-Mail: jackie.83@bigpond.com
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Referred By: Just Surfed In
Location: townswville qld
Comments: hi my son is now 5 yrs old he was born with unilatteral lip and pelate on his right and is hearing impaired i found out on my 20 week scan i only had a book handed to me and told to contact cleftpals. my son was a sllip in the system and i wish i had a lot more info than i did then and wish i had a lot more now. I have been told by his sugeon/cleft pead that he will start surgerys again around the age of 8 to repair his gum DR stalusky at townsville hospital did a wonderful job a stranger on the street dont even Know he has any thing wrong until you tell them he is very head strong and out going



Friday 05/23/2008 8:25:27pm
Name: kelly
E-Mail: kellyjahy@hotmail.com
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Referred By: Search Engine
Location: boronia heights qld
Comments: hi this site is wonderful i have 4 children and 2 of my daughters were born with pierre robin syndrome just this week the middle daughter was diagnosed with a sub mucous cleft palate so that makes 3 out of 4 i was just wondering if anyone was able to help me with identifying how they both connect



Thursday 05/01/2008 4:18:56am
Name: Phill and Stef Legg
E-Mail: steflegg@hotmail.com
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Referred By: Search Engine
Location: Gold Coast
Comments: Hi all. Our son Jordan born 1/9/07 (cleft of soft palate only) has just had his surgery last week. We would like to thank everyone who offered help and a big special thanks to Wendy from QLD CleftPals. We would also like any tips on post opp care as Jordan (or is it us??) is finding it very dificault to sleep. He is waking every hour on the hour. Any help would be greatly appriciated. Phill and Stef Legg.

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