Sunday 10/26/2008 7:24:50am Name: Jackie Button E-Mail: jackie.83@bigpond.com Homepage Title: Homepage URL: Referred By: Just Surfed In Location: townswville qld Comments: hi my son is now 5 yrs old he was born with unilatteral lip and pelate on his right and is hearing impaired i found out on my 20 week scan i only had a book handed to me and told to contact cleftpals. my son was a sllip in the system and i wish i had a lot more info than i did then and wish i had a lot more now. I have been told by his sugeon/cleft pead that he will start surgerys again around the age of 8 to repair his gum DR stalusky at townsville hospital did a wonderful job a stranger on the street dont even Know he has any thing wrong until you tell them he is very head strong and out going

Friday 05/23/2008 8:25:27pm Name: kelly E-Mail: kellyjahy@hotmail.com Homepage Title: Homepage URL: Referred By: Search Engine Location: boronia heights qld Comments: hi this site is wonderful i have 4 children and 2 of my daughters were born with pierre robin syndrome just this week the middle daughter was diagnosed with a sub mucous cleft palate so that makes 3 out of 4 i was just wondering if anyone was able to help me with identifying how they both connect

Thursday 05/01/2008 4:18:56am Name: Phill and Stef Legg E-Mail: steflegg@hotmail.com Homepage Title: Homepage URL: Referred By: Search Engine Location: Gold Coast Comments: Hi all. Our son Jordan born 1/9/07 (cleft of soft palate only) has just had his surgery last week. We would like to thank everyone who offered help and a big special thanks to Wendy from QLD CleftPals. We would also like any tips on post opp care as Jordan (or is it us??) is finding it very dificault to sleep. He is waking every hour on the hour. Any help would be greatly appriciated. Phill and Stef Legg.

Monday 12/17/2007 1:41:40am Name: Rachael McGuren E-Mail: marcpuss@optusnet.com.au Homepage Title: Homepage URL: Referred By: Just Surfed In Location: Brighton Comments: My daughter was born with a unilateral cleft lip and a bilateral palate on October 3, 2007. Prior to her birth I was able to view images of children with similar clefts and saw the before and after photos. Her cleft was detected at the 20 weeks scan however they could tell me exactly what we were to expect (unilateral/ bilateral - lip and palaet) as every time we went for a scan her hands would be in front of her mouth. Not having a history of clefts in the family this was very informative and helpful. I have ordered feeding equipment and always received it a few days later which has been great as far as service goes. We have sent in our membership to Cleftpals. After having a child with a cleft it is amazing how many people you run in to that have had a cleft or know of some one how has a cleft. Last Saturday whilst having my daughters photo taken with santa a young man approached me - Brett - I wasn't sure who he was until he introduced himself and then mentioned he had a similar cleft as a child. This was great and furthermore I was amazed at how educated his small children were about clefts - this was a very nice surprise. Furthermore It was good to see in person how unnoticeable the cleft can be after the surgeries. Thank you

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