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CleftPALS QLD INC.
 
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Wednesday 12/03/2008 8:15:17pm
Name: Jane Bettington
E-Mail: bettington@hotmail.com
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Referred By: Just Surfed In
Location: Tamworth NSW
Comments: Have you had any luck applying for support in schools? I am having difficulty signing off on the student having 'a disability' - a physical condition involving the motor system that limits the student's functioning??? I want to get Early Intervention for this child.




Sunday 10/26/2008 7:24:50am
Name: Jackie Button
E-Mail: jackie.83@bigpond.com
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Referred By: Just Surfed In
Location: townswville qld
Comments: hi my son is now 5 yrs old he was born with unilatteral lip and pelate on his right and is hearing impaired i found out on my 20 week scan i only had a book handed to me and told to contact cleftpals. my son was a sllip in the system and i wish i had a lot more info than i did then and wish i had a lot more now. I have been told by his sugeon/cleft pead that he will start surgerys again around the age of 8 to repair his gum DR stalusky at townsville hospital did a wonderful job a stranger on the street dont even Know he has any thing wrong until you tell them he is very head strong and out going




Friday 05/23/2008 8:25:27pm
Name: kelly
E-Mail: kellyjahy@hotmail.com
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Referred By: Search Engine
Location: boronia heights qld
Comments: hi this site is wonderful i have 4 children and 2 of my daughters were born with pierre robin syndrome just this week the middle daughter was diagnosed with a sub mucous cleft palate so that makes 3 out of 4 i was just wondering if anyone was able to help me with identifying how they both connect




Thursday 05/01/2008 4:18:56am
Name: Phill and Stef Legg
E-Mail: steflegg@hotmail.com
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Referred By: Search Engine
Location: Gold Coast
Comments: Hi all. Our son Jordan born 1/9/07 (cleft of soft palate only) has just had his surgery last week. We would like to thank everyone who offered help and a big special thanks to Wendy from QLD CleftPals. We would also like any tips on post opp care as Jordan (or is it us??) is finding it very dificault to sleep. He is waking every hour on the hour. Any help would be greatly appriciated. Phill and Stef Legg.




Monday 12/17/2007 1:41:40am
Name: Rachael McGuren
E-Mail: marcpuss@optusnet.com.au
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Referred By: Just Surfed In
Location: Brighton
Comments: My daughter was born with a unilateral cleft lip and a bilateral palate on October 3, 2007. Prior to her birth I was able to view images of children with similar clefts and saw the before and after photos.
Her cleft was detected at the 20 weeks scan however they could tell me exactly what we were to expect (unilateral/ bilateral - lip and palaet) as every time we went for a scan her hands would be in front of her mouth. Not having a history of clefts in the family this was very informative and helpful. I have ordered feeding equipment and always received it a few days later which has been great as far as service goes. We have sent in our membership to Cleftpals.
After having a child with a cleft it is amazing how many people you run in to that have had a cleft or know of some one how has a cleft. Last Saturday whilst having my daughters photo taken with santa a young man approached me - Brett - I wasn't sure who he was until he introduced himself and then mentioned he had a similar cleft as a child. This was great and furthermore I was amazed at how educated his small children were about clefts - this was a very nice surprise. Furthermore It was good to see in person how unnoticeable the cleft can be after the surgeries. Thank you

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